This last time we all believe her safety was in other hands, supernatural ones. She was not functioning normally. Her drive from the Boise airport to her place was a miracle. The first 5 days she was gravely ill. It was terrifying to watch a limp, lethargic daughter laying there for days.
This is a brief medical history as we remember it:
Chief Complaint: Progressively increasing intensity of debilitating symptoms associated with flying as demonstrated by the following history. (related from most current to present) These symptoms have not appeared during a flight. They usually start the day after a flight and linger.
Flight: Boise to Seattle
Utilized pressure equalization with no ear pain.
Post flight day 2: fatigue, eye pressure, minimal nausea
Day 3: Space Needle Trip (650 ft in 43 seconds, 10 MPH). Symptoms following were extreme fatigue, slow gait, no appetite, lightheadedness, blurry vision, pressure in eyes, inability to focus, disorientation, gait disturbance by that evening. She asked if her eyes were bleeding? Eyes kept rolling around in a strange way.
Day 4: Woke up gagging, diarrhea, vomiting (dry heaves), felt disoriented. Flight scheduled that night to return to Boise.
Flight: Seattle to Boise 1/19/11
Inability to focus to find car/follow signs to exit. Eye pain, Heart pain, and difficulty breathing. Extremely blurry vision, felt like she was in a tunnel. By the time she made it to the home of relatives, her skin was white and she was disoriented, pupils dilated, shaking uncontrollably.
1/20/11: Following day: extremely lethargic, slowed speech, difficulty responding to questions. Aware of her surroundings but inability to respond. Emotional lability, crying hysterically. (This is contrary to her natural character).
Progressively non responsive. Inability to eat or drink.
Admitted to ER.
Treatment: monitored her vitals, IV for hydration, anti-inflammatory meds and benedryl. Migraine RX recommended which we did not fill.
- Hide quoted text -
Tylenol PM : 2 capsules on 1/20
Gaba 4 times/day, Adrenal support: 2 capsules 2x/day.
Vit. C: 1000mg. TID
Hydrated with water as able.
Response: different pattern of healing this time: This time her mind is clearing but bodily symptoms are slower. 1/23/11: Still slow and sluggish motor coordination, decreased ability to coordinate vision, disconnect from her body. Update today, January 31. She went to work for 4 hours. Able to drive. She is connecting and coordinating
better. Her tongue feels tight and clumsy when she tries to talk. Since she started to talk again, it has gotten more noticeable. Her left eye has continued to be scratchy, irritated, bruised, achy with pressure behind it.
Fall, 2008 Seattle to Hawaii
Nausea, blurred vision, eye pressure, lightheadedness, disorientation, slow motor movement and speech. Slow recovery upon return to home but kept working.
Summer, 2007 Seattle to Mississippi
No notable symptoms following this flight.
Summer, 2007 Seattle to Austria (3 month stay)
Day 2 post flight: sick, lightheadedness, disorientation, blurred vision, inability to visually or mentally focus, body/brain disconnect, fatigue, needed to lie still and stay in quiet environment.
Saw a german MD but translation issues were difficult. Given antibiotics thinking it was an inner ear infection. Required 3 weeks to get back to normal.
Flight home from Austria:
Similar symptoms occurred as described above. Saw primary MD who suggested anti depressants. Saw a psychologist for 6 weeks who determined it was not a mental health issue. Anti depressants meds were declined.
Went to see a vision specialist: negative results
Short MRI performed: Negative relults
ENT: Negative. “He felt is was due to an over active imagination, too much salt? and panic attacks.
2006, Seattle to Israel (2 week trip)
Symptoms following: extreme fatigue, nausea and vomiting, inability to participate in tour requiring bedrest. Lightheadedness, slowed movement and speech. Eye pain and blurred vision, confusion. Tried Dramamine: seemed to accentuate her symptoms.
2005 Seattle to Austria (3 month stay)
No significant symptoms noted other than fatigue.
2004 Seattle to Israel
Symptoms: Sick the 2nd day after arrival with lightheadedness, disorientation, lethargy and fatigue.
2003, age 14 Seattle to North Dakota
Symptoms: sick following flight with fatigue, ear pain and inability to depressurize ears.
Other PMH: fractured clavicle at age 12
She isn't motion sick. She doesn't have vertigo. We have followed trails for possible altitude sickness/decompression sickness, or aerotoxic syndrome. Both were negative.
Tomorrow she has an appointment with an opthamologist - not to see if she needs new glasses.......
I'm staying with her this week until she is completely stable or we know something more. Keep us in your thoughts and prayers, please. :)